Long Covid in Canada

RECOGNITION | RESEARCH | REHABILITATION

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Recognition

The Canadian Donation and Transplantation Research Program

Long COVID: Call to share your experience

Immunocompromised individuals such as transplant recipients are particularly impacted by COVID-19, being at higher risk of severe outcomes including mortality. For transplant recipients surviving COVID-19, little is known about effective rehabilitation strategies nor strategies to support long-term recovery of quality of life.

Long COVID is a poorly understood condition where an individual has long-term effects of SARS-CoV-2 infection with persisting symptoms or symptoms appearing after the typical convalescence period. A wide range of symptoms are commonly reported, including fatigue, headaches, shortness of breath, loss of smell, muscle pain, fever and depression or anxiety.

Even less is known about the impact of long COVID in immunocompromised populations. To understand more about this condition, we invite transplant patients and families to share their experiences living with long COVID. Whether you are a transplant recipient, a family member, or a caregiver, your opinion matters.

Please take 5 minutes to share your experience below, and we look forward to connecting with you.

Go To Survey

University of Victoria

How does COVID-19 impact the brain? Are there certain risk factors that influence the impact of COVID-19 on the brain?

Psychology researchers at the University of Victoria and York University would like to learn about the impacts of COVID-19 on the brain. We are asking persons aged 19+ who have been diagnosed with COVID-19 at least 3 months ago to participate in two sessions that include 1) a set of confidential online surveys (~45 minutes); and 2) a Zoom-based cognitive assessment (~60 minutes), to help us investigate the ways in which COVID-19 impacts the brain and thinking abilities, and the influence of different risk and protective factors. This will include collecting information about your demographics, as well as health, psychological, and cognitive functioning.

If you are 19 years or older and are currently living in British Columbia or Ontario (Canada) then you may be eligible to participate. You will receive a $40 gift card for your involvement. Please visit t.ly/nioON to learn what is expected of you in this study. To participate, contact us at covid_cog_study@uvic.ca (BC residents) or c3lab@yorku.ca (ON residents).

Principle Investigators: Dr. Theone Paterson (University of Victoria) and Dr. Kristina Gicas (York University)

This study has been approved by York University and University of Victoria’s respective Research Ethics Boards (REB #2021-368; REB #21-0362).

University of Saskatchewan, University of Manitoba, Patient Led Research Collaborative

Balance and Mobility with Long Covid Study

The College of Kinesiology at the University of Saskatchewan, University of Manitoba and Patient Led Research Collaborative are conducting a study to assess the effects of long-COVID on balance (the ability to stay upright), mobility (the ability to move around safely and independently), and falls for people living in Canada. This study is being done because there is currently a lack of data on the effects of long-COVID and its impact on balance and mobility.

As part of this study, you will be asked questions about your experience with acute COVID and long-COVID, balance, mobility, and falls. Participation in the survey is completely voluntary and you are able to pause the survey and continue at any time. The survey is estimated to take approximately ~30-35 minutes with mild/moderate/considerable cognitive effort to complete and will be open until March 18, 2022.

Your identity and/or IP addresses will not be collected in order to protect your confidentiality.

Please only complete this survey once. If you need a break between questions, there will be an option to pause if needed and then continue the survey when you are ready. Please select the link below to start the survey.

By completing and submitting the questionnaire, YOUR FREE AND INFORMED CONSENT IS IMPLIED and indicates that you understand the above conditions of participation in this study.

LINK HERE: https://www.surveymonkey.ca/r/longCOVIDBalance_Mobility

Please contact the research team if you have any questions:

Alison Oates (alison.oates@usask.ca or 1-306-966-1080)

Mustafa Shahbaz (mus250@usask.ca)

Research

Long-term cardiovascular outcomes of COVID-19

Study after study is showing how Covid-19 impacts the heart, far beyond the acute stage of the virus. The risk extends not only to those whom were hospitalized, but also in asymptomatic and mild cases. Tracking, planning, resources and rehabilitation must begin nationwide for those who are and will continue to be impacted. We must urgently address the long term symptoms of Covid-19.

Nature

In summary, using a national cohort of people with COVID-19, we show that risk and 12-month burden of incident cardiovascular disease are substantial and span several cardiovascular disease categories (ischemic and non-ischemic heart disease, dysrhythmias and others). The risks and burdens of cardiovascular disease were evident even among those whose acute COVID-19 did not necessitate hospitalization. Care pathways of people who survived the acute episode of COVID-19 should include attention to cardiovascular health and disease.

Even Mild Covid Can Cause Brain Damage, Study Suggests

The infected participants also showed a “significantly greater cognitive decline” between their two scans than those who did not test positive, the researchers found, which is associated with damage to the cerebellum, a brain region linked to cognition.

Most people in the study experienced mild Covid infections—just 15 were hospitalized—and the researchers found the changes to cognition and the brain after infection were still significant after hospitalized participants had been excluded from the analysis.

That finding is important, the researchers said, as most of the brain-related studies of Covid-19 to date have focused on hospitalized patients with severe disease.

First They Got Long Covid. Then, It Made Them Homeless

A poignant interview of the realities of life with Long Covid. Based in the United States, the same could be written of Canadians.

Lack of information about Long Covid and no common diagnostic guidelines for physicians, many Canadians are not appropriately diagnosed, thus unable to apply for income supports, including private and public disability claims and programs.

Many sick Canadians are suffering from the lack of medical and financial support due to disability from Long Covid.

Rolling Stone

Elizabeth Yuko

“Without an income, Taylor had no choice but to move out of the motel and into a tent behind the dumpster of the local doughnut shop. She estimates that over the course of the spring and summer of 1010 she stayed in at least two-dozen different places, ranging from a cardboard bo to friends’ couches to motel rooms.”

“We are only beginning to scratch the surface of [understanding] the effects of long Covid on folks’ financial well-being – including their housing security, or lack thereof,”says Megan Ranney, M.D, the associate dean for strategy and innovation at brown University, and co-leader of the School of Public Health’s Long Covid Initiative. “Unfortunately, for much of America, living with long Covid is enough to put folks over the edge financially, with very limited safety nets.”

Rehabilitation

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